Sunday, December 15, 2013

手术后 Post Kasai

女儿被送进了PICU观察,如果情况良好的话,明天/当晚就可以转去普通病房看护。在PICU看了一下女儿之后,我就回家休息了,回家前是千吩咐万吩咐他们如果有什么事一定要联络我们。那天我有好好的睡上一觉。

26.11.13
还特地倒回去kk拿女儿之前的验黄记录而导致迟了到医院。到了PICU时,他们正准备着把女儿转去6楼的手术后病房部。今天的女儿看起来还是有点肿,不过她已经不用靠管子来呼吸了。有点心疼的看到那条在她喉咙的管子弄到女儿的嘴巴看起来干干的。女儿还是有点累累的,哭声还有得沙哑和没力气。没关系宝贝,你已经很棒了,慢慢来。

6楼的手术后病房部跟之前7楼完全不一样,基本上有些父母是没有留在孩子身边过夜的,所以,起初女儿进的床位并没有厕所,是6-7个床位一起的一个空间。没办法,就只能走远一些上厕所了。

照顾女儿的第一晚,就被女儿的微烧37.5度吓得不敢睡觉,一直帮女儿换湿手帕敷额头。一直到4个小时后,护士说女儿降温了,我才放心的睡一下。

27.11.13
一早,手术主医生就来巡访了,关心的是女儿排便了没。除了这个,医生说女儿的情况so far so good,要继续观察。这天,我向护士学习了怎样帮女儿擦身体,也第一次在手术后帮女儿穿上了衣服。目前等待的是女儿手术后的排便,观察会不会出现手术后的发烧。当天的晚上,女儿排便了,不过还是之前留下的宿便。

28.11.13
随着女儿越来越清醒,她的哭声也会因为饿而越来越强烈。可是医生还没允许她开始进食,所以我们只能尽力去安慰她。最后一次排便的颜色是很让on call医生满意,可是他们还是需要请示主医生才可以决定是否让宝宝开始进食。他们需要确保里面的接口愈合得比较好后,才让宝宝开始进食。

29.11.13
早上主医生巡访之后,终于让宝宝开始进食了,从1oz起,不过要留意宝宝会否因为进食而出现呕吐的情况。1oz后的两个小时,没呕吐,宝宝可以喝2oz,再两个小时没问题,就逐渐加到她本来的3oz。不过其实宝宝的胃口还没真正的恢复,她只吃到2oz而已。原本让医生满意的大便颜色,也随着开始进食,恢复了以前的浅黄色。医生说需要时间,可是有看到浅黄色的我们,心都沉了。

刚被转上6楼时,未能穿衣服 ; She just got transferred to 6th floor, can't put her clothe on yet

精神有比较好了 ; She look more awake now


让医生满意的粪便颜色 ; The stool which doctor feel ok with
start feeding后又变回之前的颜色了 ; The pale stool is back right after her 1st feeding

She will have to spend a night in PICU for observation.If her condition is good enough, they will probably transferred her out right after a day.

26.11.13
We were late to hospital cause we went back to the klinik kesihatan for her previous reports. When we reached PICU, they were about to transfer her to 6th floor. She still look "swollen" due to drip, but she can breath by her own now. There is a tube which connecting straight to her stomach made her lips look really dry. She still look tired after all, no strength and still losing her voice. But thats alright, you are doing great enough, take it slow baby.

The room in 6th floor is totally different comparing to 7th floor. There is no toilet and you are sharing a room with around 8-9 others patients.

First night taking care of her in 6th floor got scared by her 37.5 degree fever. I dare not sleep but just keep changing her forehead wet towel. Finally the fever came down.

27.11.13
Early morning, her surgeon came and ask if she pass motion yet. Surgeon said that my daughter is doing good. I learned how to clean her body from the nurse and this is the very first time we put her clothe on after the operation. We wait for her to pass motion and hopefully there is no fever for her. She finally pass motion during night time, but the color is still pale as last time.

28.11.13
She is getting more and more awake. She cried louder when she feel hungry. But she is still on fasting. The doctors need to make sure her inner wound heal before she is ready to be fed. Although the stool color did changed to darker.

29.11.13
Her surgeon finally allow her to start feeding. Beginning with 1oz and slowly increase the amount intake and notice if she will vomit after her feed. She can only take 2oz at the moment. Her stool back to her previous color, its killing for us to see the pale color stool again.


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